
So here I am, eight days before Christmas eve, and I was going to check my overflowing emails because the only thing I have done is finish a book and write an extra post I posted today. The different thing I did out of my norm is that I have music in my ears instead of a book, and it’s just a 2000s playlist I found on Spotify. It opened the gate for thoughts and memories; I felt the need to write like every writer. Plus, there is something that I need to share and process regarding my health, but I wasn’t ready.
Last November, I visited my specialist to check on my hand injury. I knew it, but the doctor confirmed that my Cerebral Palsy has deteriorated. What I don’t get is how nonchalantly she acted while she told me. The only option she gave me was botox in the muscle to try and remove some of the pain. Of course, the side effect is more muscle fatigue in that hand, which doesn’t make it an option in my head. So, thank God I’m stubborn because it’s how I move forward on bad days
I have caught myself wanting to tear up, but I think it’s a human thing to feel. Testosterone is bitter-sweet here since I cannot cry to let it out, and it’s sweet because I can still stay composed in times when it can be overwhelming. In terms of transition, this is something in the pipeline; alas, I won’t say it out loud until it happens. I need to start another writing project since it’s a relief when a story in my head fills the page. Sorry that my posts weren’t as Christmasy as I had planned.
Alex
Hope everything works out for you.
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it sure brings life lessons and no matter how hard they might be you should welcome them
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That’s a positive attitude, even if sometimes, we forget. It’s hard to be upbeat all the time and that’s okay. We all go through down times. I just hope that things continue to get better for you and that you have a lot more up times, than you do downs. No one can really understand what someone else is going through, all anyone can do is just be there for the person. A lot of bloggers are there for you and love your blog. 🙂
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I love you guys too 🙂
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really nice blog post. Thanks for sharing this one
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It was a hard one to write
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I can imagine. Good to get your thoughts down and share them.
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Thanks
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No problem.
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Wow, you are fast!
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I try to be
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I wish I had your hands hehe
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Haha
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Not funny but funny all the same 🙂
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Would I be taking unfair advantage if I started nagging? You are allowed a little weep, rant, perhaps even a swear and a mini ‘It’s not fair,’ tantrum. We can all close our ears while you go for it and come out the other side stronger, determined, -yes, OK, stubborn is good too.
You are one very strong guy, Alex. Remember that if the hand starts playing up too much, and give him a good talking to. 😀 x
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Thanks
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I love your blog. You have a lot of courage and don’t let life get you down. I admire that about you.
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Thank you
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I’m sorry to hear about your cerebral pulsy worsening.
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It’s life
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Very courageous and inspiring of you to share some of your personal struggles. Sending you my best wishes at what is a tough time. I sincerely hope everything works out. You certainly seem to have a positive attitude in the face of adversity which is what life is all about 🌞😊
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The hardest is being a writer
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I work with humans with cerebral palsy and I cannot relate to what you feel but can understand it. Written so beautifully! May you get all the courage and strength to get ahead of this. Sending love 🙂
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Can we collab?
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Sure, could you elaborate more on what you wish to write/collab on?
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You rprospective
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So I’m a physiotherapist doing my master’s in neurology and mainly work with adults and children with neurological conditions. I wish to write about the kinds of issues people face through rehabilitation when they face certain conditions. I would love to get perspective on your journey!
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Sure!
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I like the term you used “blog mas.”
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Hi! Stay strong. U will get well soon.
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Being a survivor of progressive disability myself, I can relate to it…being stubborn has been a life saving trait
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Same
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